
Multiple Sclerosis For Dummies
by Kalb, Rosalind; Holland, Nancy; Giesser, Barbara; Lander, David L.Rent Book
New Book
We're Sorry
Sold Out
Used Book
We're Sorry
Sold Out
eBook
We're Sorry
Not Available
How Marketplace Works:
- This item is offered by an independent seller and not shipped from our warehouse
- Item details like edition and cover design may differ from our description; see seller's comments before ordering.
- Sellers much confirm and ship within two business days; otherwise, the order will be cancelled and refunded.
- Marketplace purchases cannot be returned to eCampus.com. Contact the seller directly for inquiries; if no response within two days, contact customer service.
- Additional shipping costs apply to Marketplace purchases. Review shipping costs at checkout.
Summary
Author Biography
Rosalind Kalb, PhD, is Associate Vice President of the Professional Resource Center at the National Multiple Sclerosis Society in New York City. After receiving her doctorate in clinical psychology from Fordham University in 1977, Dr. Kalb began her career at the MS Care Center, providing individual, group, and family therapy for people living with MS. Dr. Kalb is the author of the National MS Society’s Knowledge is Power series for individuals newly diagnosed with MS and is an editor of Keep S’myelin, the newsletter for children who have a parent with MS. Dr. Kalb has edited two books on MS — Multiple Sclerosis: The Questions You Have, The Answers You Need, 3rd Edition (Demos Medical Publishing, 2004), and Multiple Sclerosis: A Guide for Families, 3rd Edition (Demos Medical Publishing, 2006). She is also coauthor, along with Nicholas LaRocca, PhD, of the book Multiple Sclerosis: Understanding the Cognitive Challenges (Demos Medical Publishing, 2006).
Nancy Holland, EdD, RN, is Vice President of Clinical Programs at the National Multiple Sclerosis Society in New York City. Prior to joining the Society, Dr. Holland served as the MS Care Center’s Clinic Coordinator and Director of Training for 15 years. She is a founding director of the International Organization of MS Nurses. She is also author or editor of more than 60 MSrelated articles, chapters, and books, including Comprehensive Nursing Care in Multiple Sclerosis, 2nd Edition (Demos Medical Publishing, 2002), Multiple Sclerosis: A Self-Care Guide for Wellness, 2nd Edition (Demos Medical Publishing, 2005), and Multiple Sclerosis: A Guide for the Newly Diagnosed, 3rd Edition (Demos Medical Publishing, 2007). Dr. Holland earned a doctorate in higher and adult education from Columbia University, and holds undergraduate and graduate degrees in nursing.
Barbara Giesser, MD, is an Associate Clinical Professor of Neurology and Clinical Director of the MS Program at the University of Los Angeles (UCLA) David Geffen School of Medicine. She also serves as the Medical Director of the UCLA Marilyn Hilton MS Achievement Center.
Dr. Giesser has specialized in the care of persons with MS since 1982, beginning with her training at the MS Care Center. She has been an invited lecturer to speak about MS in regional, national, and international venues, and has published research in the areas of cognition, gender issues, and rehabilitation strategies in persons with MS. Additionally, she has been active in developing educational materials about MS for medical students, residents, healthcare professionals, and people with MS for organizations including the NMSS and the American Academy of Neurology.
Table of Contents
Foreword | p. xix |
Introduction | p. 1 |
About This Book | p. 1 |
Conventions Used in This Book | p. 2 |
What You're Not to Read | p. 2 |
Foolish Assumptions | p. 2 |
How This Book Is Organized | p. 3 |
When MS Becomes Part of Your Life | p. 3 |
Taking Charge of Your MS | p. 3 |
Staying Healthy and Feeling Well | p. 4 |
Managing Lifestyle Issues | p. 4 |
Creating Your Safety Nets | p. 5 |
The Part of Tens | p. 5 |
Appendixes | p. 5 |
Icons Used in This Book | p. 6 |
Where to Go from Here | p. 6 |
When MS Becomes Part of Your Life | p. 7 |
Meeting MS Face to Face | p. 9 |
Introducing the Roles Your Immune and Nervous Systems Play in MS | p. 10 |
The immune system: Your body's frontline defender | p. 10 |
The nervous system: Your body's CEO | p. 10 |
What happens in MS | p. 11 |
Taking advantage of the body's natural healing process | p. 13 |
Exploring Possible MS Triggers | p. 14 |
Gender clues | p. 14 |
Ethnic or racial clues | p. 15 |
Geographical clues | p. 15 |
Genetic clues | p. 16 |
Lifestyle clues | p. 16 |
Understanding Why Your MS is as Unique as Your Fingerprint | p. 17 |
Distinguishing the four disease types | p. 17 |
Scanning the possible symptoms | p. 19 |
Perusing the MS Treatment Menu | p. 19 |
Recognizing How Your MS Affects Your Loved Ones | p. 21 |
Talking about the tough stuff | p. 21 |
Keeping daily life on track | p. 22 |
Maintaining healthy partnerships | p. 22 |
Becoming confident parents | p. 22 |
Minimizing the Impact of MS on Work and Play | p. 23 |
Taking Steps to Protect Your Quality of Life | p. 24 |
So, What Is it, Doc? Getting a Diagnosis | p. 25 |
Clarifying the Diagnostic Criteria | p. 25 |
Getting Familiar with the Neurologist's Diagnostic Tools | p. 27 |
Medical history | p. 28 |
Neurologic exam | p. 28 |
Various medical tests | p. 30 |
Identifying a clinically isolated syndrome | p. 35 |
Understanding Why the Road to Diagnosis Can Be Full of Twists and Turns | p. 36 |
You've Been Diagnosed - So What's Next? | p. 37 |
First Things First: Sorting Out Your Feelings | p. 37 |
Shock: "This can't be happening" | p. 38 |
Denial: "This isn't happening" | p. 38 |
Confusion: "Why me?" | p. 39 |
Anxiety: "What's going to happen to me?" | p. 39 |
Anger: "Why can't you fix what's happening to me?" | p. 40 |
Relief: "Thank goodness - I thought it was something worse!" | p. 40 |
Deciding on the Next Steps | p. 41 |
Catch your breath before making any major changes or decisions | p. 42 |
Have a heart-to-heart conversation with your neurologist about treatment | p. 42 |
Begin talking about MS with the people in your life | p. 42 |
Make a commitment to your health | p. 44 |
Facing the Longer-Term Challenges of a Chronic Illness | p. 44 |
The how-to of healthy grieving | p. 45 |
Living with unpredictability | p. 47 |
Making Treatment and Lifestyle Choices That Work for You | p. 50 |
Minimizing the stress of decision-making | p. 50 |
Getting the professional help and personal support you need | p. 51 |
Creating Your Healthcare Team | p. 53 |
Working with Your Physician | p. 53 |
Finding a neurologist with the qualities you value | p. 54 |
Establishing a pattern of routine care | p. 56 |
Making the most of your doctor visits | p. 56 |
Knowing when to call in the MS specialist | p. 58 |
Getting a second opinion | p. 59 |
Rounding Up Other Key Players | p. 60 |
The nurse for education, guidance, and support | p. 60 |
The rehabilitation specialists to help you keep on truckin' | p. 61 |
The mental health specialists to help you keep your head on straight | p. 63 |
The general medical doctors | p. 65 |
Considering Comprehensive MS Treatment Centers | p. 65 |
Taking Charge of Your MS | p. 67 |
Developing Your Management Plan to Take Charge of Your MS | p. 69 |
Using Multiple Strategies to Manage MS | p. 69 |
Modifying the disease course | p. 70 |
Managing acute relapses | p. 70 |
Taking charge of your symptoms | p. 71 |
Enhancing function through rehabilitation | p. 71 |
Providing psychosocial support | p. 72 |
Taking care of your health | p. 72 |
Tapping Your Creativity and Flexibility | p. 73 |
Creating Your Own Treatment Template | p. 74 |
Managing the Disease Course and Treating Relapses | p. 77 |
Managing the Disease Course | p. 78 |
Understanding the whys and wherefores of early treatment | p. 78 |
Getting familiar with the immunomodulators | p. 79 |
Turning to immunosuppressants | p. 85 |
Setting realistic expectations for the DMTs | p. 86 |
A word about primary-progressive MS | p. 87 |
Managing Relapses | p. 88 |
Defining a relapse | p. 88 |
Treating an acute relapse | p. 90 |
Getting Comfortable with Your Treatment Decisions | p. 93 |
Managing Fatigue, Walking Problems, Visual Changes, and Tremor | p. 95 |
Foiling Your Fatigue | p. 96 |
Identifying and dealing with the causes of fatigue | p. 96 |
Managing your energy bank to help put your sleepiness to bed | p. 101 |
Envisioning Solutions to Vision Problems | p. 102 |
Managing visual symptoms | p. 102 |
Exploring longer-term management strategies | p. 106 |
Getting Around Walking Problems | p. 106 |
Addressing the sources of the problem | p. 106 |
Using aids to take charge of your mobility | p. 110 |
Taming Tremor | p. 113 |
Handling Problems with Bladder and Bowel Function, Pain, Sex, and Speech and Swallowing | p. 115 |
Eliminating Elimination Problems | p. 115 |
Managing your bothersome bladder | p. 116 |
Dealing with your bowel symptoms | p. 119 |
Sizing up Sexual Symptoms | p. 122 |
Identifying the changes you may be experiencing | p. 122 |
Silence isn't golden: Talking is the first step | p. 124 |
Treating your sexual symptoms | p. 126 |
Sidestepping Sensory Symptoms and Pain | p. 130 |
Sorting out Speech and Swallowing Problems | p. 133 |
Speech and voice problems: Articulating the facts | p. 133 |
Watching out for swallowing problems | p. 134 |
Getting Your Head around Problems with Thinking and Mood | p. 137 |
Handling Problems with Thinking and Memory | p. 137 |
Defining cognition | p. 138 |
Understanding how MS can affect your cognition | p. 138 |
Deciding when an evaluation is in order | p. 141 |
Knowing what to expect during an evaluation | p. 142 |
Identifying treatment options | p. 143 |
Employing practical strategies for managing daily cognitive challenges | p. 144 |
Managing the Emotional Ups and Downs | p. 145 |
Controlling mood swings | p. 146 |
Getting a handle on uncontrolled laughing or crying | p. 147 |
Dealing with severe depression | p. 148 |
Considering Complementary and Alternative Medicine | p. 153 |
Defining CAM | p. 154 |
Understanding the Allure | p. 155 |
Putting CAM to the Test | p. 155 |
Understanding the role of the FDA | p. 156 |
Sorting out the wheat from the chaff | p. 156 |
Identifying CAM Interventions That May Be Useful in Managing MS Symptoms | p. 158 |
Herbs, vitamins, and other CAM options that go into the body | p. 158 |
Exercise, prayer, and other CAM options done independently or in a class | p. 160 |
Acupuncture, massage, and other CAM options performed by a practitioner | p. 161 |
Becoming a Cautious Cam Consumer | p. 162 |
Staying Healthy and Feeling Well | p. 165 |
Paying Attention to Your Health - It's Not All about MS | p. 167 |
Enhancing Your Wellness by Paying Attention to the Whole You | p. 167 |
Scheduling Routine Checkups to Protect Your Health | p. 168 |
Making Healthy Eating a Priority | p. 169 |
Taking MS into account when planning your menu | p. 170 |
Battling the barriers to healthy eating | p. 171 |
Improving Your MS and Overall Wellness with Exercise | p. 172 |
Overcoming the hurdles | p. 173 |
Exercising your options | p. 174 |
Maximizing your comfort and safety during exercise | p. 176 |
Increasing Your Chances of Success | p. 177 |
Handling Stress without Giving Up Your Life | p. 179 |
Understanding the Relationship between Stress and MS | p. 179 |
Recognizing Your Own Signs of Stress | p. 180 |
From sweaty palms to pounding hearts: Knowing your physical signs of stress | p. 180 |
Anxiety and irritability: Knowing your emotional signs of stress | p. 181 |
Identifying the Major Stresses in Your Life | p. 182 |
Dealing with the devil: Job stress 101 | p. 182 |
Handling family stress with grace and composure | p. 183 |
Controlling the uncontrollable: Managing your MS stress | p. 183 |
Developing Your Stress Management Plan | p. 184 |
Figuring out your priorities | p. 185 |
Setting realistic goals | p. 185 |
Cutting yourself some slack | p. 186 |
Taking some practical steps | p. 186 |
Tapping available resources | p. 188 |
Zoning in on your "MS-free zone" | p. 188 |
Practicing stress management techniques | p. 189 |
Coping with Advanced MS | p. 191 |
Scouting Out the Treatment Scene | p. 191 |
Understanding your disease-management options | p. 192 |
Exploring ways to feel and function at your best | p. 194 |
Taking steps to prevent unnecessary complications | p. 195 |
Maintaining Your Quality of Life | p. 197 |
Holding on to what's important to you | p. 197 |
Stay in touch: Preserving your connections with other people | p. 198 |
Establishing goals and enjoying the satisfaction of meeting them | p. 198 |
Keeping your self-image well-polished | p. 199 |
Finding your "MS-free zone" | p. 199 |
Helping yourself by helping someone else | p. 200 |
Discovering Long-Term Care Services (Just In Case) | p. 201 |
Defining long-term care | p. 201 |
Getting help in your home | p. 202 |
Looking into adult day care | p. 203 |
Identifying assisted living options | p. 204 |
Considering nursing home care | p. 204 |
Important Tips for Caregivers | p. 205 |
Managing Lifestyle Issues | p. 207 |
Presenting Your MS Face to the World | p. 209 |
Explaining Your MS to Others | p. 209 |
Providing the basics | p. 210 |
Dealing with common reactions | p. 211 |
Remembering that MS is part of you but not all of you | p. 214 |
Disclosing Your Diagnosis to a Prospective Partner | p. 215 |
Communicating Your Needs | p. 218 |
Giving clear messages | p. 218 |
Staking out your independence | p. 219 |
P.S. The doctor can't read your mind either | p. 220 |
Making MS a Part of the Family | p. 221 |
Addressing Your Family Members' Feelings about Your Diagnosis | p. 221 |
Communicating Effectively with Adult Family Members | p. 223 |
Recognizing communication barriers | p. 223 |
Getting the ball rolling toward more open communication | p. 224 |
Keeping the Family Rhythm Going so Your MS Doesn't Steal the Show | p. 227 |
Coping with the direct and indirect costs | p. 228 |
Managing energy and time | p. 228 |
Establishing family priorities | p. 230 |
Problem-solving: Many heads are better than one | p. 230 |
Building and Maintaining Healthy Partner Relationships | p. 231 |
Making time for each other | p. 231 |
Keeping the intimacy alive | p. 232 |
Maintaining a balanced partnership | p. 233 |
What to do when one partner can't participate in joint activities | p. 233 |
Turning a caregiving relationship into a care partnership | p. 234 |
When Your Child Has MS | p. 235 |
Helping your adult child with MS | p. 235 |
Young children and teens get MS too | p. 237 |
And Baby Makes Three, Four, or More: Planning a Family around Your MS | p. 241 |
MS and Babies: Here's the Good News! | p. 241 |
Fertility isn't affected by MS | p. 242 |
Pregnancy hormones reduce disease activity | p. 242 |
Pregnancies don't increase a woman's long-term disability level | p. 243 |
Childbirth isn't a piece of cake for anyone but women with MS do just fine | p. 243 |
Parents with MS have healthy babies | p. 244 |
Breastfeeding is definitely an option | p. 244 |
Considering Key Issues when Making Family-Planning Decisions | p. 245 |
Minding your medications | p. 245 |
Remembering that babies don't stay babies very long | p. 246 |
Facing the uncertainties: The future doesn't come with guarantees | p. 247 |
Strategies for Smart Decision-Making | p. 247 |
Consult your MS doctor | p. 247 |
Evaluate your financial situation | p. 248 |
Take a good look at your teamwork | p. 248 |
Check out your support network | p. 249 |
Have a heart-to-heart with your partner | p. 249 |
Talk to other parents living with MS | p. 249 |
Remember that your plans can change | p. 250 |
Parenting: It Wasn't Easy Before You Had MS! | p. 251 |
Keeping the Communication Lines Open | p. 252 |
Telling the kids about your MS makes good sense | p. 252 |
Sharing info with your children when secrecy is important | p. 254 |
Finding ways to broach the big issues | p. 255 |
Explaining those pesky invisible symptoms | p. 256 |
Parenting around Your MS Symptoms | p. 258 |
"I'm so tired that I'm in bed before they are!" | p. 258 |
"How can I be a good dad if I can't even play ball?" | p. 259 |
"How can I discipline 'em if I can't catch 'em?" | p. 261 |
Employing Effective Parenting Strategies | p. 262 |
Call a spade a spade: Let MS take the blame when it needs to | p. 262 |
Polish up your creativity and flexibility | p. 262 |
Call on your support network | p. 263 |
Remember, MS isn't always to blame - other people's teenagers are a pain too | p. 263 |
Handle little problems before they get bigger | p. 264 |
Allow kids to be kids | p. 265 |
Creating Your Safety Nets | p. 267 |
Keeping Your Place in the Workforce | p. 269 |
Understanding the High Rate of Unemployment in MS | p. 269 |
Counting the Reasons to Keep on Truckin' | p. 270 |
Speed Bumps Ahead: Recognizing the Job-Related Challenges | p. 271 |
When symptoms get in the way | p. 271 |
When attitudes get in the way | p. 272 |
Knowing Your Rights under the ADA | p. 275 |
Disclosing your MS in the workplace | p. 275 |
Understanding the terms used in the law | p. 277 |
Requesting reasonable accommodations | p. 278 |
Calling in the EEOC | p. 279 |
Thinking about Leaving Your Job | p. 280 |
Exhausting your short-term leave options | p. 280 |
Looking into long-term disability options | p. 280 |
Making the choices that are right for you | p. 282 |
Getting a Grip on Insurance | p. 283 |
Considering Your Health Insurance Options - It's All about Eligibility | p. 283 |
Employment-based insurance programs | p. 284 |
Public health insurance programs | p. 284 |
Self-employment options | p. 285 |
Options if you don't have health insurance | p. 285 |
Keeping a Tight Hold on Your Health Insurance | p. 286 |
Continuing coverage with COBRA | p. 286 |
Protecting your coverage with HIPAA | p. 289 |
Seeing COBRA and HIPAA work as a team | p. 290 |
Understanding the Ins and Outs of Your Health Insurance Plan | p. 290 |
Filing Successful Insurance Appeals | p. 292 |
Check your coverage | p. 292 |
Confirm why coverage was denied or was less than expected | p. 292 |
File an appeal | p. 293 |
Replacing Your Income with Disability Insurance | p. 293 |
Commercial disability insurance | p. 294 |
Public disability insurance: SSDI | p. 295 |
A Brief Word about Life and Long-Term Care Insurance | p. 296 |
Planning for a Future with MS | p. 297 |
Preparing for the Worst While Hoping for the Best | p. 297 |
Facing those scary "what-ifs?" | p. 298 |
Taking charge of your future | p. 298 |
Navigating the Planning Process: It's as Easy as One, Two, Three | p. 300 |
Where are you now? | p. 300 |
What might the future bring? | p. 303 |
What can you do now to be ready? | p. 306 |
The Part of Tens | p. 309 |
Ten Must-Do's for Living with MS | p. 311 |
Educate Yourself about MS | p. 311 |
Work with Your Neurologist | p. 312 |
Start Treatment Early | p. 312 |
Make MS a Part of the Family | p. 312 |
Develop Your Support Network | p. 313 |
Plan for the Future | p. 313 |
Feel Healthy and Well | p. 313 |
Create Your Tool Chest | p. 314 |
Monitor Your Mood | p. 314 |
Keep Your Sense of Humor Well-Oiled | p. 314 |
Ten MS Myths Debunked | p. 315 |
MS is Fatal | p. 315 |
Everyone Eventually Needs a Wheelchair | p. 315 |
Because There's No Cure, There's Nothing You Can Do about Your MS | p. 316 |
People with MS Can't Handle Stress | p. 316 |
People with MS Shouldn't Have Children | p. 317 |
"Natural" Treatments Are Safer | p. 317 |
No One Can Understand How You Feel | p. 317 |
Having a Relapse Means Your Medication Isn't Working | p. 318 |
Scientists Aren't Making Any Progress | p. 318 |
If You Can't Walk, Your Life Is Over | p. 318 |
Ten Tips for Trouble-Free Travel | p. 319 |
Tap the Right Resources | p. 319 |
Calm Your Medical Concerns | p. 320 |
Save Energy for the Fun Stuff | p. 320 |
Check Ahead for Accessibility | p. 320 |
Rent Accessible Vehicles | p. 321 |
Keep Your Cool | p. 321 |
Navigate Air Travel with Confidence | p. 321 |
Safely Pack Your Prescriptions | p. 322 |
Get Vaccinated | p. 322 |
Look for Adventure | p. 322 |
Appendixes | p. 323 |
Glossary | p. 325 |
Additional Resources | p. 339 |
Reading Other Books about MS | p. 339 |
Finding Helpful Information Online | p. 341 |
General information sites | p. 342 |
Assistive technology sites | p. 342 |
Government sites | p. 343 |
Organizations and services | p. 343 |
Chat rooms and bulletin boards | p. 344 |
Medications Commonly Used in MS | p. 345 |
Index | p. 349 |
Table of Contents provided by Ingram. All Rights Reserved. |
An electronic version of this book is available through VitalSource.
This book is viewable on PC, Mac, iPhone, iPad, iPod Touch, and most smartphones.
By purchasing, you will be able to view this book online, as well as download it, for the chosen number of days.
Digital License
You are licensing a digital product for a set duration. Durations are set forth in the product description, with "Lifetime" typically meaning five (5) years of online access and permanent download to a supported device. All licenses are non-transferable.
More details can be found here.
A downloadable version of this book is available through the eCampus Reader or compatible Adobe readers.
Applications are available on iOS, Android, PC, Mac, and Windows Mobile platforms.
Please view the compatibility matrix prior to purchase.