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Summary

When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading. Praise for the first edition of Cerebral Palsy: "Addresses the many complexities and uncertainties related to this diagnosis. At the same time, it provides the information parents, grandparents, caregivers, and health professionals need -- everything from medical, educational, and psychosocial implications to wheelchair maintenance and dental care." -- Exceptional Parent

Author Biography

Steven J. Bachrach is a clinical professor of pediatrics at Jefferson Medical College.

Table of Contents

Forewordp. vii
Prefacep. ix
Acknowledgmentsp. xi
Contributorsp. xiii
Cerebral Palsy Handbook
What Is Cerebral Palsy?p. 3
An Overview of Early Child Developmentp. 17
Medical Problems Associated with Cerebral Palsyp. 41
Intellectual, Psychological, and Social Developmentp. 97
Hemiplegiap. 123
Diplegiap. 145
Quadriplegiap. 167
The Adult with Cerebral Palsyp. 207
How the Health Care System Worksp. 229
Financing Care for the Child with Cerebral Palsyp. 247
Navigating the Educational Systemp. 257
Being an Advocate for Your Child: Using the Legal Systemp. 269
Caregiving Techniques
Taking Care of Yourself When You Care for Othersp. 297
Protecting the Caregiver's Back: Basic Body Mechanicsp. 300
Making Things Easier for You and Your Child: Home Modificationsp. 302
Choosing Appropriate Seatingp. 304
Choosing and Using Car Seatsp. 309
About Wheelchair Maintenancep. 310
Pressure Management Awarenessp. 312
Choosing a Standerp. 313
About Walkers and Gait Trainersp. 316
About Bracesp. 317
Choosing the Correct Shoesp. 319
Increasing Independence with Service Dogsp. 320
Managing the Systemp. 321
Working with a Case Managerp. 322
Letters of Medical Necessityp. 323
Occupations for Adults with Cerebral Palsyp. 325
About Hospitalizationp. 327
Keeping Medical History Recordsp. 331
Life Planning Processp. 335
About Castsp. 337
Using Nutritional Boostersp. 340
Managing Tube Feedingsp. 341
Oral Hygiene: Providing Mouth and Teeth Carep. 343
Toilet Training Your Childp. 344
Giving an Enemap. 346
Giving Rectal Medications or Suppositoriesp. 347
Suctioning Techniquesp. 349
Cerebral Palsy Encyclopedia
From Achilles Tendon Lengthening to Vocational Rehabilitationp. 353
Resources: Support Groups, Foundations, and Government Agenciesp. 463
Recommended Reading and Toys, and Where to Go to Chat with Othersp. 473
Indexp. 477
Table of Contents provided by Ingram. All Rights Reserved.

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